SoCA - End-of-life Care

Project Overview

Duration:2020 - 2022
Funding:DZNE Witten
Project Management:Dr. Bernhard Holle
Project Coordination:Dr. Christiane Pinkert

International research mainly assumes that – irrespective of the setting – the care of people living with dementia at the end of life is currently insufficient. While research with regard to palliative care for people living with dementia in institutional settings increased remarkably in the last years, empirical knowledge related to home-based end-of-life care remains scarce. The aim of this study was to understand a) how care for people with dementia in the last phase of life living at home is organised in Germany, b) which role family carers play in care and c) which factors contribute to people with dementia being able to be cared for at home until the end of their lives. Thematic content analysis was used to analyse interviews with experts in outpatient palliative care. The results of this study point to care needs and demands, factors that promote stability in the last phase of life and a lack of support services for family carers. This knowledge can be used for the development of care interventions that strengthen the stability of home-based care arrangements in the last phase of life of people living with dementia.


Dr. Christiane Pinkert
Stockumer Str. 12
+49 2302 926-228

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