Research Data/Biomaterialproben of DZNE's Clinical Research

Meeting schedule for data/biomaterials requests

In order to allow for a factual review by the data management and the biorepository, data/biomaterial requests must have been submitted to
klinische-studien(at)dzne.de at least 8 days prior to the meeting of the relevant panel. Unfortunately, late submissions cannot be considered for consultation.

Panel Responsibility
AG Biomaterial
(Internal DZNE Expert Panel)
The AG Biomaterial makes recommendations to the Steering Committees and the Clinical Board after review of requests that include biomaterials.
Clinical Advisory Board (CAB)
(Cross-site Advisory Committee for Clinical Research of the DZNE)
The CAB reviews cross-center and cross-cohort requests as well as requests from external researchers.
Clinical Executive Board (CEB)
(Cross-site Management Committee for Clinical Research of the DZNE)
The CEB votes on the requests reviewed and proposed for approval by the CAB.
Steering Committee (SC) The Steering Committees vote on cross-center applications of the respective study or cohort.
Meeting Schedule       (last update: 21-May-2024)
2024          
April   May   June  
> 01.

04.
04.
09.
11.
> 15.
22.
25.
SC: DESCRIBE-FTD/ALS/PSP (postponed!)
Brain Bank
Clinical Board
Ataxia
AG Biomaterial
SC: DESCRIBE-FTD/ALS/PSP (new date!)
DESCRIBE-PD (optional)
SC: DELCODE
02.
> 06.

09.
14.
16.
23.
> 27.
Clinical Board
SC: DESCRIBE-FTD/ALS/PSP
(without study teams)
AG Biomaterial
Brain Bank Committee
Brain Bank
SC: DELCODE
DESCRIBE-PD (cancelled!)
03.
06.
10.
13.
14.
24.
27.
27.
SC: DESCRIBE-FTD/ALS/PSP
Clinical Advisory Board
Ataxia
AG Biomaterial
Clinical Executive Board
DESCRIBE-PD
Brain Bank
SC: DELCODE
July   August   September  
01.
04.
11.
12.
22.
25.
DESCRIBE-FTD/ALS/PD Studyteams
Clinical Advisory Board
AG Biomaterial
Clinical Executive Board
DESCRIBE-PD (optional)
SC: DELCODE
01.
05.
08.
08.
09.
12.
19.
22.
Clinical Advisory Board
SC: DESCRIBE-FTD/ALS/PD
AG Biomaterial
Brain Bank
Clinical Executive Board
Ataxie
DESCRIBE-PD (optional)
SC: DELCODE
 
02.
05.
12.
13.
19.
23.
26.
DESCRIBE-FTD/ALS/PSP Studyteams
Clinical Advisory Board
AG Biomaterial
Clinical Executive Board
Brain Bank
DESCRIBE-PD
SC: DELCODE

Clinical Data Search Tool - CDST

The Clinical Data Search Tool - CDST provides the ability to retrieve information on existing data/materials from clinical research studies.

Request for Data and Biomaterial

The data/biomaterial request form as well as the regulations for use of the databases, data and samples of the Clinical Research of the DZNE can be found here...

Data Releases

Data Management regularly provides data exports of quality-assured research data. Below you will find an overview of the data exports of the individual cohorts:

(last update: 01-Feb-2023
Cohorts DESCRIBE-FTD
DESCRIBE-ALS
DESCRIBE-Cognition
DESCRIBE-Movement
DESCRIBE-PSP
MiGAP DELCODE  
Release Date June 2023 January 2023 October 2023 March 2023  

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