Research Data/Biomaterialproben of DZNE's Clinical Research

Meeting schedule for data/biomaterials requests

In order to allow for a factual review by the data management and the biorepository, data/biomaterial requests must have been submitted to
klinische-studien(at)dzne.de at least 8 days prior to the meeting of the relevant panel. Unfortunately, late submissions cannot be considered for consultation.

Panel Responsibility
AG Biomaterial
(Internal DZNE Expert Panel)
The AG Biomaterial makes recommendations to the Steering Committees and the Clinical Board after review of requests that include biomaterials.
Clinical Board
(Cross-site Management Committee for Clinical Research of the DZNE)
The Clinical Board votes on cross-center and cross-cohort requests and requests from external applicants.
Steering Committee (SC) The Steering Committees vote on cross-center applications of the respective study or cohort.
Meeting Schedule       (last update: 12-Sep-2022)
2022          
Juli   August   September  
04.
07.
08.
14.
14.
22.
28.
DESCRIBE-FTD study team
Clinical Board
DESCRIBE-PD (optional)
AG Biomaterial
Brain Bank
SC: DESCRIBE-PSP
SC: DELCODE
01.
09.
11.
11.
12.
25.
25.
25.
SC: DESCRIBE-FTD
Ataxia
Clinical Board (new date!)
SC: DESCRIBE-PSP (cancelled!)
DESCRIBE-PD (cancelled!)
AG Biomaterial (new date!)
Brain Bank
SC: DELCODE
01.
05.
08.
09.
15.
15.
Clinical Board
DESCRIBE-FTD study team (cancelled!)
AG Biomaterial
DESCRIBE-PD
SC: DESCRIBE-PSP (cancelled!)
SC: DELCODE (brought forward!)
October   November   December  
03.
06.
11.
13.
13.
14.
27.
SC: DESCRIBE-FTD
Brain Bank
Ataxia
AG Biomaterial
Clinical Board (new date!)
DESCRIBE-PD (optional)
SC: DELCODE
03.
07.
08.
10.
11.
17.
24.
Clinical Board
DESCRIBE-FTD study team
Brain Bank Committee
AG Biomaterial
DESCRIBE-PD (optional)
Brain Bank
SC: DELCODE
01.
05.
08.
09.
13.
22.
Clinical Board
SC: DESCRIBE-FTD
AG Biomaterial
DESCRIBE-PD
Ataxia
SC: DELCODE

Clinical Data Search Tool - CDST

The Clinical Data Search Tool - CDST provides the ability to retrieve information on existing data/materials from clinical research studies.

Request for Data and Biomaterial

The data/biomaterial request form as well as the regulations for use of the databases, data and samples of the Clinical Research of the DZNE can be found here...

Data Releases

Data Management regularly provides data exports of quality-assured research data. Below you will find an overview of the data exports of the individual cohorts:

(last update: 01.02.2022)
Cohorts DESCRIBE-FTD
DESCRIBE-ALS
DESCRIBE-Cognition
DESCRIBE-Movement
DESCRIBE-PSP
MiGAP DELCODE  
Release Date June 2022 January 2022 October 2022 March 2022  

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