Research Data/Biomaterialproben of DZNE's Clinical Research

Meeting schedule for data/biomaterials requests

In order to allow for a factual review by the data management and the biorepository, data/biomaterial requests must have been submitted to
klinische-studien@dzne.de at least 8 days prior to the meeting of the relevant panel. Unfortunately, late submissions cannot be considered for consultation.

Panel Responsibility
AG Biomaterial
(Internal DZNE Expert Panel)
The AG Biomaterial makes recommendations to the Steering Committees and the Clinical Board after review of requests that include biomaterials.
Clinical Board
(Cross-site Management Committee for Clinical Research of the DZNE)
The Clinical Board votes on cross-center and cross-cohort requests and requests from external applicants.
Steering Committee (SC) The Steering Committees vote on cross-center applications of the respective study or cohort.
Meeting Schedule       (last update: 10.01.2022)
2022          
Januar   Februar   März  
06.
10.

13.
14.
20.
27.
27.
Clinical Board
DESCRIBE-FTD study team (Rescheduled!)
AG Biomaterial
DESCRIBE-PD => Cancelled!
SC: DESCRIBE-PSP (optional)
Brain Bank
SC: DELCODE
03.
07.
08.
10.
10.
11.
24.
Clinical Board
SC: DESCRIBE-FTD
Ataxia
AG Biomaterial
SC: DESCRIBE-PSP
DESCRIBE-PD (optional)
SC: DELCODE
03.
07.
10.
10.
11.
17.
24.
Clinical Board
DESCRIBE-FTD study team
AG Biomaterial
Brain Bank
DESCRIBE-PD
SC: DESCRIBE-PSP (optional)
SC: DELCODE
April   Mai   Juni  
04.
07.
08.
12.
14.
14.
21.
28.
SC: DESCRIBE-FTD
Clinical Board
DESCRIBE-PD (optional)
Ataxia
AG Biomaterial
SC: DESCRIBE-PSP
Brain Bank
SC: DELCODE
02.
05.
10.
12.
13.
19.
26.
DESCRIBE-FTD study team
Clinical Board
Brain Bank Committee
AG Biomaterial
DESCRIBE-PD (optional)
SC: DESCRIBE-PSP (optional)
SC: DELCODE
02.
02.
06.
09.
09.
10.
17.
23.
Brain Bank
Clinical Board
SC: DESCRIBE-FTD
AG Biomaterial
SC: DESCRIBE-PSP
DESCRIBE-PD
Ataxia
SC: DELCODE
Juli   August   September  
04.
07.
08.
14.
14.
21.
28.
DESCRIBE-FTD study team
Clinical Board
DESCRIBE-PD (optional)
AG Biomaterial
Brain Bank
SC: DESCRIBE-PSP (optional)
SC: DELCODE
01.
04.
09.
11.
11.
12.
25.
25.
SC: DESCRIBE-FTD
Clinical Board
Ataxia
AG Biomaterial
SC: DESCRIBE-PSP
DESCRIBE-PD (optional)
Brain Bank
SC: DELCODE
01.
05.
08.
09.
11.
22.
Clinical Board
DESCRIBE-FTD study team
AG Biomaterial
DESCRIBE-PD
SC: DESCRIBE-PSP (optional)
SC: DELCODE
October   November   December  
03.
06.
07.
11.
13.
14.
27.
SC: DESCRIBE-FTD
Brain Bank
Clinical Board
Ataxia
AG Biomaterial
DESCRIBE-PD (optional)
SC: DELCODE
03.
07.
08.
10.
11.
17.
24.
Clinical Board
DESCRIBE-FTD study team
Brain Bank Committee
AG Biomaterial
DESCRIBE-PD (optional)
Brain Bank
SC: DELCODE
01.
05.
08.
09.
13.
22.
Clinical Board
SC: DESCRIBE-FTD
AG Biomaterial
DESCRIBE-PD
Ataxia
SC: DELCODE

Clinical Data Search Tool - CDST

The Clinical Data Search Tool - CDST provides the ability to retrieve information on existing data/materials from clinical research studies.

Request for Data and Biomaterial

The data/biomaterial request form as well as the regulations for use of the databases, data and samples of the Clinical Research of the DZNE can be found here...

Data Releases

Data Management regularly provides data exports of quality-assured research data. Below you will find an overview of the data exports of the individual cohorts:

Cohorts DESCRIBE-FTD
DESCRIBE-ALS
DESCRIBE-Kognition
DESCRIBE-Bewegung
MiGAP
TGA
EnergI
DESCRIBE-PSP
DESCRIBE-PD
DELCODE
Release Date June 2021 August 2021 October 2021 December 2021 March 2022

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