Research Data/Biomaterialproben of DZNE's Clinical Research

Meeting schedule for data/biomaterials requests

In order to allow for a factual review by the data management and the biorepository, data/biomaterial requests must have been submitted to
klinische-studien@dzne.de at least 8 days prior to the meeting of the relevant panel. Unfortunately, late submissions cannot be considered for consultation.

Panel Responsibility
AG Biomaterial
(Internal DZNE Expert Panel)
The AG Biomaterial makes recommendations to the Steering Committees and the Clinical Board after review of requests that include biomaterials.
Clinical Board
(Cross-site Management Committee for Clinical Research of the DZNE)
The Clinical Board votes on cross-center and cross-cohort requests and requests from external applicants.
Steering Committee (SC) The Steering Committees vote on cross-center applications of the respective study or cohort.
Meeting Schedule 2021        
January   February   March  
21.
28.
SC: DESCRIBE-PSP
SC: DELCODE
02.
04.
04.
11.
22.
25.
SC: DESCRIBE-FTD/ALS
DESCRIBE-PD
Clinical Board
AG Biomaterial - cancelled! -
Ataxie
SC: DELCODE
04.
11.
18.
25.
DESCRIBE-PD
AG Biomaterial
SC: DESCRIBE-PSP
SC: DELCODE
April   May   June  
01.
01.
06.
08.
13.
22.
29.
DESCRIBE-PD
Clinical Board
SC: DESCRIBE-FTD/ALS
AG Biomaterial
Ataxie
SC: DELCODE
DESCRIBE-PD
06.
13.

27.
27.
SC: DESCRIBE-PSP
AG Biomaterial (Public holiday, alternative date t.b.a.)
SC: DELCODE
DESCRIBE-PD
01.
03.
08.
10.
15.
24.
SC: DESCRIBE-FTD/ALS
Clinical Board
Ataxie
AG Biomaterial
SC: DELCODE
DESCRIBE-PD
July   August   September  
08.
08.
22.
22.
AG Biomaterial
SC: DESCRIBE-PSP
SC: DELCODE
DESCRIBE-PD
03.
05.
10.
12.
19.
26.
SC: DESCRIBE-FTD/ALS
Clinical Board
Ataxie
AG Biomaterial
DESCRIBE-PD
SC: DELCODE
02.
09.
16.
23.
SC: DESCRIBE-PSP
AG Biomaterial
DESCRIBE-PD
SC: DELCODE
October   November   December  
05.
07.
12.
14.
14.
28.
28.
SC: DESCRIBE-FTD/ALS
Clinical Board
Ataxie
AG Biomaterial
DESCRIBE-PD
SC: DELCODE
SC: DESCRIBE-PSP
11.
11.
25.
AG Biomaterial
DESCRIBE-PD
SC: DELCODE
02.
07.
09.
09.
14.
23.
23.
Clinical Board
SC: DESCRIBE-FTD/ALS
AG Biomaterial
DESCRIBE-PD
Ataxie
SC: DELCODE
SC: DESCRIBE-PSP

Clinical Data Search Tool - CDST

The Clinical Data Search Tool - CDST provides the ability to retrieve information on existing data/materials from clinical research studies.

Request for Data and Biomaterial

The data/biomaterial request form as well as the regulations for use of the databases, data and samples of the Clinical Research of the DZNE can be found here...

Data Releases

Data Management regularly provides data exports of quality-assured research data. Below you will find an overview of the data exports of the individual cohorts:

Cohorts DESCRIBE-FTD
DESCRIBE-ALS
DESCRIBE-Kognition
DESCRIBE-Bewegung
MiGAP
TGA
EnergI
DESCRIBE-PSP
DESCRIBE-PD
DELCODE
Release Date June 2021 August 2021 October 2021 December 2021 March 2022

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