About 8,000 people in Germany suffer from amyotrophic lateral sclerosis (ALS), and with them many families. At this year’s information day, which was organized for the fourth time under the direction of Dr. Patrick Weydt, DZNE scientist and head of the “ALS Ambulanz” at the University Hospital Bonn (UKB), patients and their relatives were able to learn about the latest scientific developments in ALS treatment and care: Experts from DZNE, UKB and from all over Germany presented the current state of research.
Donation Checks of 80,000 Euros From “Alle Lieben Schmidt”
Also on stage was ALS patient and activist Bruno Schmidt, who in a conversation with moderator Sabine Heinrich talked about his fight against the incurable disease and offered encouragement to other patients in a very emotional way. On stage, he presented two cheques from his association “ALS - Alle Lieben Schmidt e.V.”: 30,000 euros for research at DZNE and 50,000 euros to the “ALS-Ambulanz” of UKB.
Due to corona, the lecture hall of DZNE could only be occupied by 100 people. However, since the event was simultaneously broadcast via YouTube on the Internet, more than 600 on Saturday alone had already followed the lectures from home.