Direct contact to the DZNE Patient Advisory Board via email:
patientenbeirat@dzne.de
NEURO INITIATIVE 4.0 – gemeinsam gegen Neurodegeneration
An initiative of the YUVEDO Foundation and the DZNE Patient Advisory Board
More and more people, including younger people, are suffering from neurodegenerative diseases - in Germany alone, more than 2 million people have dementia or Parkinson's disease. To date, there are no effective therapies for these diseases that slow down or stop the progression of neurodegenerative diseases.
The consequences of the diseases are severe for those affected and their relatives, both physically and psychosocially. This is also due to the social stigma that still exists. These diseases can last for decades.
The effects on society are immense in the medium and long term: the care of patients, especially in the advanced stages, interferes with the lives and activities of numerous other people. Our health and care system is currently not geared to the increasing number of people affected.
Our goal is to use strong patients, smart minds and the application of artificial intelligence to drive forward determined neuro and brain research in Europe and to create public awareness. This requires unconditional political support across parties.
Therefore, we demand from German and European politics:
In Germany and Europe, we must finally give special status to the education, care and research of neurodegenerative diseases and the development of effective therapies. We need the will to ensure that Germany and Europe are at the forefront of developments in this area. Lack of ambition in this task will soon cost us and future generations in Germany and Europe a great deal of prosperity and will cause us all many unsolved problems and great suffering.
