Meeting schedule for data/biomaterials requests
In order to allow for a factual review by the data management and the biorepository, data/biomaterial requests must have been submitted to
klinische-studien(at)dzne.de at least 8 days prior to the meeting of the relevant panel. Unfortunately, late submissions cannot be considered for consultation.
| Panel | Responsibility |
| AG Biomaterial (Internal DZNE Expert Panel) | The AG Biomaterial makes recommendations to the Steering Committees and the Clinical Board after review of requests that include biomaterials. |
| Clinical Board (Cross-site Management Committee for Clinical Research of the DZNE) | The Clinical Board votes on cross-center and cross-cohort requests and requests from external applicants. |
| Steering Committee (SC) | The Steering Committees vote on cross-center applications of the respective study or cohort. |
| Meeting Schedule | (last update: 22-Apr-2024) | ||||
| 2024 | |||||
| January | February | March | |||
| > 08. 09. 11. 11. 22. 25. | Clinical Board (new date!) DESCRIBE-ALS-FTD-PSP Studyteams AG Biomaterial Brain Bank DESCRIBE-PD SC: DELCODE | 01. 05. 08. 13. 22. 22. > 26. | Clinical Board SC: DESCRIBE-FTD/ALS/PSP AG Biomaterial Ataxie Brain Bank SC: DELCODE DESCRIBE-PD (cancelled!) | 04. 07. 14. 25. 28. | DESCRIBE-ALS-FTD-PSP Studyteams Clinical Board AG Biomaterial DESCRIBE-PD SC: DELCODE |
| April | May | June | |||
| > 01. 04. 04. 09. 11. > 15. 22. 25. | SC: DESCRIBE-FTD/ALS/PSP (postponed!) Brain Bank Clinical Board Ataxia AG Biomaterial SC: DESCRIBE-FTD/ALS/PSP (new date!) DESCRIBE-PD (optional) SC: DELCODE | 02. 06. 09. 14. 16. 23. 27. | Clinical Board DESCRIBE-ALS-FTD-PSP Study teams AG Biomaterial Brain Bank Committee Brain Bank SC: DELCODE DESCRIBE-PD (optional) | 03. 06 11. 13. 24. 27. 27. | SC: DESCRIBE-FTD/ALS/PSP Clinical Board Ataxia AG Biomaterial DESCRIBE-PD Brain Bank SC: DELCODE |
Clinical Data Search Tool - CDST
The Clinical Data Search Tool - CDST provides the ability to retrieve information on existing data/materials from clinical research studies.
Request for Data and Biomaterial
The data/biomaterial request form as well as the regulations for use of the databases, data and samples of the Clinical Research of the DZNE can be found here...
Data Releases
Data Management regularly provides data exports of quality-assured research data. Below you will find an overview of the data exports of the individual cohorts:
| (last update: 01-Feb-2023 | |||||
| Cohorts | DESCRIBE-FTD DESCRIBE-ALS | DESCRIBE-Cognition DESCRIBE-Movement DESCRIBE-PSP | MiGAP | DELCODE | |
| Release Date | June 2023 | January 2023 | October 2023 | March 2023 | |